Description
Introduction
1. The New: Receiving Your Babys Diagnosis
2. What Now? Making Decisions about Continuing Your Pregnancy
3. The Emotional Journey: Grieving and Adjusting to Your New Path
4. Waiting with Your Baby: Settling in for the Rest of your Pregnancy
5. Making Medical Decisions: Choosing Care for Your Baby
6. Getting Ready: Preparing for Your Babys Birth, Life, and Death
7. Welcoming Baby: Birth Experiences and Meeting Your Baby
8. Saying Goodbye: Holding On and Letting Go
9. Continuing Your Journey: After Your Baby Dies
10. Reflections
Appendix: Sample Outline for a Perinatal Palliative Care Birth Plan
Notes
Index
Amy Kuebelbeck (ST. PAUL, MN) is a journalist with experience at news organizations including the Associated Press and the Minneapolis Star Tribune. She described her experience of continuing a pregnancy with a life-limiting prenatal diagnosis in her memoir Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life. She is the founder and editor of perinatalhospice.org and has presented and written extensively on the topic of perinatal hospice and palliative care.
Deborah L. Davis, PhD (DENVER, CO), is a developmental psychologist, writer, and expert in neonatal medical ethics and perinatal bereavement. She is the author of Empty Cradle, Broken Heart and the coauthor of Parenting Your Premature Baby and Child. Her blog Laugh, Cry, Live explores a wide range of topics at PsychologyToday.com.