Description
Contents: Introduction to Paediatric Palliative Care. 1. The Historical Background of Paediatric Palliative Care. 2. Working Collaboratively. Responding to Holistic Needs from Diagnosis through to Terminal Care and Bereavement. 3. Assessment of Needs and Models of Care. 4. Managing Children's Pain. 5. The End of Life Phase of Care. 6. Administrative and Practical Requirements. 7. The Child's Funeral. 8. Counselling Support. 9. The Financial Impact of Caring. Meeting Individual Needs. 10. Children's Developmental Understanding and Emotional Response to Death and Dying. 11. The Impact of Life-limiting Illness on the Family. 12. Continuing Bonds. 13. Working with Siblings of Life-limited Children. 14. Grandparent Support. 15. Religious, Cultural, Secular and Spiritual Aspects of Care. 16. Post Mortem, Organ Donation and Tissue Retention. 17. The Education of the Life-limited Child. 18. Transition from Paediatric Palliative Care to Adult Services. 19. Acknowledging Staff Stress and Providing Support. The Way Forward. 20. Maintaining the Quality of Care. 21. The Role of Research and Development in Children's Hospices. References. Subject Index. Author Index.